World Down's Syndrome Day Appeal

Today we are launching an Appeal for Families. We are asking for your help.

All of our efforts right now are focused on supporting families who have a child, young person or adult who has Down’s syndrome.  For many of our families this is an increasingly anxious time as many people with Down’s syndrome have serious underlying health conditions.  The Government has confirmed that people with learning disabilities are in the category of people who are especially vulnerable during this awful crisis.

We want to do everything we possibly can to support our families at this anxious time. But we really need your help.

In response to the growing crisis around us, we cancelled all of our community fundraising events that were planned as part of Down’s Syndrome Awareness Week - that was the right thing to do. But it means we have lost fundraising income of between £70,000 and £100,000.  We urgently need to close that gap to maintain our support for families who are struggling right now.

Please help us.

We know this is a dreadful time to ask you to put your hands in your pocket but anything you can give to help maintain our lifeline to families would be amazing.

Tomorrow, is World Down’s Syndrome Day and we will celebrate the contribution that people with Down’s syndrome make to all of our lives.  Their natural kindness, love and generosity of spirit could just keep us all afloat at this dreadful time.

Please give whatever you can by:

Text LOVEDS 5 to 70085 to donate £5

Texts cost £5 plus one standard rate message

Text LOVEDS 10 to 70085 to donate £10

Texts cost £10 plus one standard rate message

Text LOVEDS 20 to 70085 to donate £20

Texts cost £20 plus one standard rate message


By donating online at

Thank you!

Important Update about Down's Syndrome Awareness Week

In view of the current Coronavirus crisis and the latest significant measures announced by Government, we have taken the decision to postpone all of our planned events as part of Down’s Syndrome Awareness Week (15-22 March). Our priority right now has to be on focusing all of our available resources on supporting families and people with Down’s syndrome at this very challenging and concerning time. 

We are very grateful to all of our supporters and community fundraisers who raise vital funds that allow us to do our work across Scotland and we hope that all of you will join us later in the year when we will return to celebrating all things Down’s syndrome in Scotland. For those of you keeping our spirits up with your wonderful videos and pictures online, please keep going – they are welcome moments of relief in these difficult times.

All of our staff are now working from home and our office in Edinburgh is closed for the time being. You can still contact us on 0300 030 2121 and we are prioritising calls around family support. We are updating our website with new information as it becomes available. You can find information and resources about Coronavirus here.

Our 21 in 21!

We have been doing a 21 in 21 among our staff team, we have been rowing a mile every day– with extras thrown in to cover weekends!   

Here are some of the team getting their mile in.

It’s not too late to take part, why not do 21 in 21 with a twist and do 21 things on March 21! We would love to hear about what you are planning let us know by emailing

Thank you to the Scottish Crown Service

We are thrilled that The Scottish Crown Office and Procurator Fiscal Service have signed up to Take A Step Forward this Awareness Week!

They want to find out more about how they can better support people with Down’s syndrome that interact with their service so we are going to be visiting them during Down’s Syndrome Awareness Week along with two of our members - Cher and Megan - to find out how we can work together on this. They are also going to be taking part in Lots of Socks!

Thank you to everyone at The Crown Service for your support.

Over 120 signed up for Lots of Socks!

We now have an amazing 129 sign-ups for Lots of Socks. Thank you to everyone who has signed up.

There is still time to get involved, sign up here:

Thank you to the Celebrities who have supported us so far

A massive thank you to Ross King, KT Tunstall, Grant Gilchrist, Mel Giedroyc and Mark Beaumont who threw their support behind the cause and sent us a video encouraging people to join us and celebrate World Down’s Syndrome Day.

We have been sharing their videos on Social media over the last couple of weeks, be sure to head over to our Facebook, Twitter or Instagram to have a look.

Jim Gladwell taking on the Scottish Hour Record on World Down’s Syndrome Day

We are thrilled that Track cyclist Jim Gladwell is supporting Down’s Syndrome Scotland this World Down’s Syndrome Day.

On the 21st of March Jim Gladwell will be taking to the track at the Sir Chris Hoy Velodrome in Glasgow in hopes of beating his own record for the Scottish Hour. Jim holds the current record for the Scottish Hour, the furthest distance travelled in one hour at the velodrome track, which he set in 1996. Jim has been inspired to take on this challenge by his daughter Violet, ahead of his challenge he said; “Violet is so determined and strong-willed and I’m going to try and take encouragement from her and reflect her determination in this record attempt. Children shouldn’t be defined by Down’s syndrome, and that’s why raising awareness is so important. Perceptions are changing but we need to keep going as some information and views people have are outdated.”We wish Jim all the best for his challenge, he will always be a record holder in our eyes!

You can visit Jim’s fundraising page here;

MSP Ash Denham to Highlight Down’s Syndrome Awareness Week

 MSP Ash Denham will be sharing a video to celebrate Down’s Syndrome Awareness Week. Ash Denham is the MSP for Edinburgh East and is also the Minister for Community Safety. Ash visited us last week to hear from the stars of our Take a Step Forward Awareness Week video about their hopes for the future. Tom Randall, one of the video stars lives in Ash’s constituency.  Tom’s presentation skills have been called upon again as his MPs video will feature how Tom enjoys life within his local community. The video will be shared during Awareness Week so keep an eye out for it. 

Over 100 signed up for Lots of Socks!

The number of sign ups for Lots of Socks just keeps climbing! We now have over 100 individuals, companies and schools signed up to take part! Thank you so much to everyone who has signed up and helped promote it to your school, activity club or workplace.  

We now have 30 individuals, 10 companies and 65 schools signed up!  

In alphabetical order they are; 

  • Abbotswell School
  • Acorn Day Nursery
  • Alisha Black
  • Andrew Penny
  • Angela Downie
  • Angela Grant
  • Angela Grossart
  • Ascensos Ltd
  • Aviemore Primary School
  • Baldernock Primary School
  • Banff Nursery
  • Barmulloch Primary School
  • Beauly Primary School
  • Blackwood Homes and Care
  • Bothwell Park High School
  • Bridge of Don Academy
  • Bridge Of Weir Primary School
  • Buchanan High School
  • Bunessan Primary School
  • Bun-sgoil Ghaidhlig Inbhir Nis
  • Burntisland Primary School
  • Caroline Tait
  • Caroline Tulloch and Jim Roy
  • Carronshore Primary School
  • Castleview Primary School
  • Catherine Dorrington
  • Claire Greig
  • Clare Loudon
  • Clober Primary School & Nursery
  • Collace Primary School
  • Craigie High School
  • Cramond School
  • Culross Primary School
  • Danderhall Playgroup and Early Years Centre
  • DN Dance
  • Drumbowie Primary School
  • Drummond School
  • Ellon Primary School
  • Emily McConnell
  • Errol Primary School
  • EY
  • Fetterangus Primary School
  • Fiona Ackerman
  • Fiona McNally
  • Fiona Oag
  • Firpark Primary School
  • Flora Stevenson
  • Fordbank Primary school
  • Fossoway Primary School
  • Foulford Primary School
  • Foveran  Primary School
  • Gemma Fitzpatrick
  • Gore Glen Primary School
  • Graham Copeland
  • Grange Primary School
  • Grove Academy
  • Hatton (Fintray) School
  • HC-One, Blar Buidhe Care Home
  • Heathdene Nursery
  • Heather Galbraith
  • Hill of Banchory School
  • Hill Of Fearn Primary School
  • HomeStart
  • Jayne Goddard
  • Jodie Ashton
  • Jordon McKay
  • Kininmonth School
  • Kinnoull Primary School
  • Kintore School
  • Kirkcudbright Primary School
  • Langlees Primary School
  • Laura McKie
  • Lesley Scott
  • Lisa Moggach
  • Lorraine's Little Stars Childminding
  • Louisa Fairley
  • Lynne McIntosh
  • Mandy Speirs
  • Menstrie Primary School
  • Old Rayne Playgroup
  • Old Rayne Primary School
  • Orchard Primary School and Nursery
  • Paula McQuillan
  • Perth Grammar School
  • Pitlochry High School
  • Pitreavie Primary School
  • Rachel Wilson
  • Rosslyn School
  • Shared Services Connected Ltd
  • South Lanarkshire College
  • South Morningside Primary School
  • St Saviours Primary
  • St. Anthony's Primary School
  • St. Columbas RC Primary School
  • Stuartfield primary school
  • Sylvia Macpherson
  • The Glasgow Academy (Milngavie)
  • Turriff Primary School
  • Wellgreen Nursery
  • Wendy Coutts

If you aren’t already signed up there is still time!  Sign up at the link below and you will get access to an activity pack relevant to you or your group that are taking part. 

Sign up here. 

21 Songs in 21 Days

Dave Patterson has signed up to take part in 21 in 21 in the lead up to Down’s Syndrome Awareness Day. Dave and his family are going to be signing 21 songs using Makaton in 21 day and posting the videos on his social media blog, ‘Down with Dad’.  

You can follow Dave on Facebook at ‘Down with Dad’ to hear more about what he has planned and see all of his songs.

Been inspired? 21 in 21 is your challenge to make your own, if you have an idea about 21 things you could do in 21 days sign up here: