We have known that there is a pressing need to address health inequalities and improve health outcomes for people with Down’s syndrome across Scotland.  That need has become even more acute as people with Down’s syndrome were disproportionately impacted by the COVID-19 pandemic.

Keeping healthy is important for everyone but for many reasons, people with Down’s syndrome can have poorer health outcomes than others.  Despite the fact that we have made some progress in recent years, people with a learning disability still have a life expectancy 20 years lower than the general population and we now know that children and young people with learning disabilities are at a much higher risk of premature death when compared to the general population.  In many of these instances, it is also clear that many deaths are preventable. 

Having a regular health check, ideally annually, is one possible way of getting in front of this shameful statistic.

We surveyed our members about their healthcare experiences. We found that people with Down’s syndrome and their parents wanted more information about health conditions and weren’t always aware of recommended health checks. 

We want clinicians, health professionals, GPs and everyone involved in promoting good health outcomes to #TakeAStepForward with us and support the call for annual health checks to be available and encouraged for children and adults with Down’s syndrome in Scotland.  We also want everyone involved in sport, recreation, leisure, the arts and culture to consider what role they can play in supporting our community to become more active, more involved, more often.

Get in touch at to discuss how you can get involved.

Our 4 Big Dreams


People with Down’s syndrome have an immense range of qualities and skills. And yet, only 7% of people with learning disabilities are in paid work. Let’s change that!


People with Down’s syndrome have been hit hard by the pandemic. Before COVID-19 came along, we already knew that people with learning disabilities have a life expectancy 20 years lower than the general population. Let’s change that!


COVID-19 has massively disrupted our school lives. The transition from school into adult life has become even more challenging for people with Down’s syndrome who already faced many hurdles. Let’s change that!


Local communities have been at the heart of our response to the pandemic. People with Down’s syndrome want to be active members of their local communities, living well and independent. They are not as valued and included as they want to be. Let’s change that!