People with Down’s syndrome and their families experience many transition moments in the course of their lives.  Leaving school and starting your young adult life can be a challenge for everyone but for people with Down’s syndrome this key transition step is often fraught with additional hurdles and difficulties.

We need to improve the experience of transitions for young people with Down’s syndrome as they leave school.  As school life is significantly disrupted due to the COVID-19 pandemic, this need has become even more pressing.

Making plans for moving on from school can be especially difficult for young people with Down’s syndrome and their parents. Although a set of ‘Principles of Good Transitions’ has been developed and are widely available, further work is required to ensure that these principles are applied consistently and universally across Scotland.

As an example, the principles recommend that planning should start early, from age 14, and continue up to the age of 25 but parents tell us that this is rarely the case for young people with Down’s syndrome.  Many parents and schools are not aware of this recommendation and in many instances, we are told there is little or no planning until the very last months and weeks of school. 

Our discussions with parents have also identified that an earlier transition that can present challenges is from primary to secondary school. Many parents report higher levels of input and support, for example from speech and language therapists, in primary school with reduced provision when their daughter or son reaches secondary school.

We are working with a group of teachers, allied health professionals, parents, the Scottish Government and the Scottish Transitions Forum to find new ways to improve the experiences of young people and their families as they move through school and into adulthood.  This work is even more pressing as we all cope with the upheaval to our daily lives and advanced planning to achieve a good transition appears to have taken a step backwards.

Please #TakeAStepForward with us and join our campaign to improve transition planning for young people with Down’s syndrome living in Scotland.

Get in touch at to discuss how you can get involved.

Our 4 Big Dreams


People with Down’s syndrome have an immense range of qualities and skills. And yet, only 7% of people with learning disabilities are in paid work. Let’s change that!


People with Down’s syndrome have been hit hard by the pandemic. Before COVID-19 came along, we already knew that people with learning disabilities have a life expectancy 20 years lower than the general population. Let’s change that!


COVID-19 has massively disrupted our school lives. The transition from school into adult life has become even more challenging for people with Down’s syndrome who already faced many hurdles. Let’s change that!


Local communities have been at the heart of our response to the pandemic. People with Down’s syndrome want to be active members of their local communities, living well and independent. They are not as valued and included as they want to be. Let’s change that!